Yes you guessed it, we spent yet another visit at Hotel Riley. Lillian was admitted this time for diarrhea and stomach flu. She was having 10-15 dirty diapers for several days. I had taken her to the ER up there the night before only to be waiting in the hallway outside the waiting room bc there was no room. Needless to say, I chose not to keep her and all my other kids there to catch all the junk floating around. ANYWAY, she finally looks like her old self to me. This was a slightly more tolerable stay, but it was only tuesday through friday. I still believe the docs have horrible communication issues...but hey that's me.
I've come to realize that this is actually the worst (is that a word) and best time in my entire life. I think I must somehow live in denial about the set of circumstances I've been given. I think maybe it's a coping skill. It's a lonely place to be. I used to find myself in a somewhat different category due to the fact that I chose to have a large family. I KNOW I'm in a COMPLETELY foriegn land called special needs it just doesn't always occur to me until I'm sitting in a hospital letting the student nurse change my daughter's trach so she can gain that skill. What the heck??? Does it also seem that you tire of hearing people whine about their "normal" mundane issues? I try not to be to cynical, but most of the time I'd take mundane any old day. Overall, I think I do pretty well but oh could I become bitter if I let myself go there. For example, missing your friends that for some reason have no time for you or being annoyed that absolutely noone makes an effort to visit you in the hospital. Trying to understand it is difficult so I just try to excuse or accept it and keeping moving forward. Anyone feel my pain? Holla back.